Saturday,
May 28 – evening
Chemo
#4: I ended my first round of chemo this past week with
my 4th treatment. And I begin Radiation therapy around June 6. And...I
do chemo again in late summer/early fall.
This
round of chemo hit me harder than the others. Not sure why, but I had
stronger side effects and more of them this time. I seem to be over most
of them as of yesterday, and I feel pretty good considering how I felt
on Tuesday, Wednesday and Thursday.
The
most important thing I want you to know is that when I feel bad, I try
to ignore it or push beyond it. But sometimes, I let my tiredness or crankiness
or neediness show - especially to Cindy. And although it is understandable
that I would do that, I regret doing so with her.
Cindy
is amazingly patient with me, selfless and giving, and handles all this
amazingly well. She has the stress of worrying about me and putting up
with my moods and physical challenges. She does this all wonderfully,
and on top of all that, works hard as a freelancer and takes immaculate
care of our home.
I
know I have written about Cindy here before, and I know I am "gushing"
about her now. But I just want everyone to know how unique and beautiful
she is, how she is
going through all this along with me, and how much
I love her. The tears in my eyes as I write this mean something;
I think they mean that I can't find the words to say thank you enough
to her for all she has done for me.
John
Saturday, May 21– afternoon
Twelve
days: It's been 12 days since I last wrote something here.
I have meant to update the site more often. I sometimes feel guilty that
I don't do it at least once a week, but I then remember that it has been
a new commitment of mine to do fun things and spend more time with Cindy
and my friends. That means sometimes when I could have updated the site,
Cindy and I were laughing our butts off watching "Whose Line Is It
Anyway?" (which I highly recommend to you, too). So, I will go for
QUALITY concerning my web site here, instead of QUANTITY.
Health
& Treatment Report: I've made it successfully through
3 rounds of chemo now. This coming Monday, 5/23, will be round 4, and
will be the last one in this first set. Around June 6th, I start Radiation
treatments, which go for 5 days a week for 5 weeks. Will update you when
I know a little more about what's involved with those.
I
feel like I am handling the chemo treatments very well. They sometimes
kick me in the butt, but when they do, I kick right back. Extreme tiredness,
some intestinal challenges and that cold-shock thing are the most noticeable
side effects. Overall I feel fortunate, as I know that many other people
have a harder time with chemotherapy.
Work
has been a bit stressful lately. I am working hard to not let that affect
me physically, and, I think I am accomplishing that. Our future looks
very bright.
Thanks
to all of you who support Cindy and me! - John
PS:
Thanks, C, for your surprise note below.
Tuesday, May 10– early morning
A
Note from Cindy: My friend Ann gave me a CD for my birthday
and I just loved the lyrics of this one song that really expresses how
i feel about John. The singer is Vienna Teng and the song is Harbor.
Sail
Your Sea
Meet Your Storm
All I want is to be your harbor
The Light in me
Will guide you home
All I want is to be your harbor
You've
got your journey to make
There's your horizon to chase
So go far beyond where we stand
No matter the distance
I'm holding your hand
I
am the one that is truly the lucky one to have this man in my life. -
Cindy
Monday,
May 9– early morning
Good
Days, Challenging Days: It's been a couple of weeks since
I've written. I've intended to update the site a couple of times since
then, but have either been doing fun stuff on the Good Days or just not
feeling like doing anything on the Challenging Days.
The
Challenging Days are ones
where I either get extremely tired (a weariness like no other I've experienced),
or spend a lot of time in the bathroom due to intestinal challenges. Neither
one is fun, and I understand that I am not fun to be around at those times.
;-)
The
Good Days have been WONDERFUL!
It's become clearer to me that it is the most important thing we can do
to make time for the people we care about, enjoy the simple things around
us; listen to "up" music; watch funny movies, be positive about
work challenges, and to believe that I am becoming physically, mentally
and spiritually healthier.
Cindy
and I have recently spent time walking in our neighborhood, riding bikes,
going to Scarborough Faire, watching some favorite TV shows and movies,
writing emails to friends, playing with my photography hobby, and just
enjoying each other's company. It's not that I didn't do these things
before, but I am doing more of them, and balancing that with working long
hours, submitting insurance claims and worrying over political and world
events.
I
encourage you to do the same: make time for the people you love and the
things you love to do. Spend less time getting frustrated and more time
laughing, feeling good and having fun. Everything else has a way of working
itself out for the best when you do.
John,
Cindy (and Yang)

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